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Browsing Tag

Friedreich

5 posts
MMedication
Fianna Fáil says reimbursement for Friedreich's ataxia drug to be in place from 1 October
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Fianna Fáil says reimbursement for Friedreich’s ataxia drug to be in place from 1 October

  • September 15, 2026
REIMBURSEMENT ARRANGEMENTS FOR a drug for patients suffering from Friedreich’s ataxia will be in place from 1 October. …
MMedication
Skyclarys for Friedreich's ataxia: Ireland’s drug reimbursement process needs greater transparency
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Skyclarys for Friedreich’s ataxia: Ireland’s drug reimbursement process needs greater transparency

  • August 20, 2026
LAST UPDATE | 1 hr ago Dr Suzanne Crowe THE HSE DRUGS Group’s recommendation to refuse reimbursement for…
IIreland
TDs call on pharma company to work with HSE to give access to life-changing drug Skyclarys
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TDs call on pharma company to work with HSE to give access to life-changing drug Skyclarys

  • August 18, 2026
FINE GAEL MEMBERS today met with the manufacturers of Skyclarys, a disease-modifying drug for the rare disease Friedreich’s…
MMedication
Treatment for Friedreich's ataxia should not be funded by HSE, drugs group recommends
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Treatment for Friedreich’s ataxia should not be funded by HSE, drugs group recommends

  • August 11, 2026
THE HSE DRUGS Group has recommended that a drug to treat the rare disease Friedreich’s ataxia should not…
MMedication
Taoiseach doesn't commit to timeline for approval of drug to treat Friedreich's ataxia - The Journal
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Taoiseach doesn't commit to timeline for approval of drug to treat Friedreich's ataxia – The Journal

  • July 15, 2026
Taoiseach doesn’t commit to timeline for approval of drug to treat Friedreich’s ataxia  The Journal‘Issues’ with communication on rare…
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